How much can one recover after 1 year

Hello everyone, one of the Wohaula members asked how much one could recover after 1 year. Please provide your perspective and share your experience. Thank you.
Admin on September 18 at 11:04 AM in What can you tell me?
I believe that recovery is a personal issue. It depends on two very basic concepts: 1. the severity of one's CVI and 2. Your personal goals and willingness to work. Time is not the defining factor of one's recovery. It's one's personal motivation. What do you want? What are you willing to do to get what you want?
on September 26 at 02:37 AM
2 Answer(s)
When I had my stroke, the word “recovery” meant instant, 100% rebound.  After speaking w/my neurologist, I learned it takes a couple of years to recoup, and at that, stabilize at about 90%-95% like I was before.  He sent me to an OT, I went till the insurance ran out and wasn’t really bouncing back.
 
Although I made efforts to move around, it wasn’t till about a year later, I went to a stroke conference where I found the difference between rehab and recovery.  The speaker said that Rehab is where we learn tasks to recover.  Recovery is what we do at home.  What we learned, we practice-practice-practice every day. It seemed like a big burden on ME, but w/the help of a friend, I started with small tasks and moved to bigger goals.  One thing I did was walk around the block. The block increased to two, then three, etc.  About two years later, I was walking over a mile a day.  Slowly and crookedly, but a mile every day with the assistance of a cane.  Today, another two years later, I can walk about 1.5 miles.  I still carry the cane “just in case”, as my stroke affected my balance and I experience dizziness once in a while.
 
The other key to me is acceptance. I had to lay my pride down and admit that right now this is how I am and who I am.  Thanks to people in face-to-face and online groups, I know that I’m not alone, I’ve come to accept how I am and that I cannot undo the stroke.  With that epiphany, I made it my goal to reach out to people who recently had strokes, give some hope, and let them know what I didn’t know in the beginning.
 
Joanne Nakao on October 11 at 10:57 AM
Joanne - I don't think its a matter of "laying down your pride." I do think it is a matter of acceptance of your limitations, your pride will spur you to live your life by doing whatever you can, following your interests and goals. While you may alter some of your activities, you'll till be actively involved.
on April 03 at 12:38 PM
Hi -
 
I would like to provide 2 data points.
 
1) I myself have recovered a lot since the end of year 1. Very significant. I would say probably 50-60% of my recovery was from AFTER year 1.
 
2) If you read the book of Dr Jill Bolte Taylor, the former Harvard Professor who made a complete recovery, she stated that by the end of Year 4, she could not do division. By Year 6, she was still hobbling. In Year 7, she could jump from rock to rock when hiking with friend. By year 8, she is fully back and today, she is leading the neurology program in Indiana University.
 
 
Finally, I would suggest that it is not about how much we recover in the end - it is important - much more important, what we could do to start a new life that is meaningful.
 
Check this out.
 
Hope that helps.
 
Daniel
Jing Gu on September 18 at 11:10 AM Edited
I was informed by my Physiatrist that if "I didn't recover a function in 90-days or 180-days, I probably would never recover that function.

6 years, 7 months, 19 days post-stroke, I began to smell/taste again. A few days later, I began to regain very limited recovery of left hand/wrist volitional control.

This is what I call the "Myth of Limited Time of Recovery" spoken by physicians and healthcare management insurers to justify not providing therapies to patients who request...  more
on April 01 at 06:22 AM
Additional thoughts about recovery lead me to think that the time when you accept yourself, as you are [with whatever functions work], and move forward into your life [being with people, enjoying your grandchildren, going to sporting events, movies, debating politics, reading books, playing games, buying groceries, doing your chores and home projects, thinking about intimacy, not being angry about what you can't do, is when your "real" recovery actually begins. Many survivors reach out to try...  more
on April 01 at 06:46 AM